I love big ones and small ones. I love smooth spots and hairy spots. I also love light spots and dark spots.
Why do I love spots, you ask? Because my daughter has spots. Lots of spots. But you know what? I have some spots, and I bet you do, too.
Our daughter (fingers and toes crossed at the word "daughter") has a giant congenital melanocytic nevus with multiple satellite nevi. Congenital means that it was present at birth. Melanocytic means that it is pigment based. Nevus means mole or birthmark. These birthmarks are known as CMN.
People with CMN have a slightly higher than average risk of developing melanoma in their lifetime. People with CMN can also have melanocytes (nevus cells) in their brain and/or spinal cords. The melanocytes can cause potentially life threatening conditions such as hydrocephalus and seizures.
The other challenges people with CMN face are not medical but social. Remember, nevus owners were born with their spots. Some of these spots cannot be removed due to location or size. While it may be surprising to see someone with a very large birthmark (they are rare, so most of us will not ever see one) do remember not to stare, point, laugh, or make rude remarks. People with birthmarks have feelings (and sometimes they have brothers named Adam and Jacob who are very protective of their little sisters). However, you CAN ask respectful questions.
For more information on CMN or to support research of CMN, you can find lots of helpful information through the Nevus Outreach website.
Great blog posts by parents of children with CMN:
- http://www.nohandsbutours.com/2010/01/19/a-special-need-defined-giant-congenital-nevus/
- http://asiawaitingchild.wordpress.com/2014/01/16/all-i-need-a-family-with-three-nevis-owners/
- http://www.nohandsbutours.com/2013/11/20/special-need-highlight-focus-on-congenital-nevus/

- See more at: Nevus.org

